How do patients consent to be contacted for research?
During Epic MyChart (also known as Connect) eCheck-In, patients are given the opportunity to indicate their preference (Yes, No, or Undecided) and sign a consent form to participate in CCR. Patient preferences are then stored in a secure database.
Who is eligible for the Consent to be Contacted for Research protocol?
Any patient with a visit at NYP-WCM (including East and Lower Manhattan campuses) and/or NYP-Columbia is eligible for the CCR protocol.
Can I see the patient’s Consent to be Contacted for Research preference in Epic/MyChart?
No, researchers will not be able to see if a patient has indicated that they are interested in being contacted for research through their chart directly and should contact ccr-support@med.cornell.edu for more information.
How can I use the Consent to be Contacted for Research protocol to recruit patients for my study?
The CCR protocol allows researchers to recruit patients who meet your study inclusion criteria and have consented to be contacted for research.
How do I get started using the Consent to be Contacted for Research protocol?
Investigators interested in using the CCR protocol as one of their research recruitment methods should email ccr-support@med.cornell.edu with a brief description of their study (incl. IRB protocol number) and patient cohort of interest. The study team will need approval from the Institutional Review Board (IRB) and Protocol Review and Monitoring Committee (PRMC) to use the CCR protocol.
The study team will then meet with the Research Informatics (RI) team to discuss the project and assess the feasibility of using CCR as one of the recruitment methods. The goals of the consult session are for the study team to better understand the overall CCR workflow and for the RI team to begin drafting a computable phenotype of the study’s inclusion/exclusion criteria. Once the study cohort has been identified, researchers will be given the list of patients in Epic whom they are able to message to via MyChart.
Are there fees associated with Consent to be Contacted for Research?
Currently, there are no fees associated with using the CCR protocol.